Hello everyone. It ‘s been a crazy week and a half around here. I mentioned the other week that my mom wasn’t well and she had a diagnosis of an UTI. It turns out she also had a stroke, which we learned as her condition began to deteriorate instead of improve throughout the week. She has been in the hospital since Saturday night, and it has been a confusing, emotional, stressful time. I would like to see the adult in charge please?
Despite everything she has been going through, she is doing ok. The stroke affected her left side, and mainly the vision in that eye, and her arm. Her arm however seems to be doing better, and it seems as if her vision is as well. Before she wasn’t turning her head to the left at all, and now she will track me if I move around the room, from one side of the bed to the other. Yay for improvements!
I feel so guilty everyone. I am not able to be there all the time and I feel awful. But I have a son who is also medically complex who needs me as well. It is hard for my husband to get time off easily, and I am there as much as I can. This is such a very difficult situation for me- and I feel so bad. This is all just so hard.
I actually spent all morning this morning speaking to the hospital social worker, insurance, and the place where she lives, basically negotiating for care for my mother. I hate that this is our system. It is absolutely deplorable. However, I managed to get the best I could for her, with her resources and the hospital timeframe. I think I have a good plan in place and it gives my brother and I more time to research if this is the best option. We were told my mom needs long term care and was not recommended rehab, but also where she lives, she wasn’t receiving all those extra services, plus, they wanted to send her back today. Make it make sense people. She needs long term care but send her back to independent living? I managed to set everything up and they will discharge her tomorrow.
Needless to say, I am exhausted. After I visit my mom tonight, I am going to come home and take a dark shower, do some serious skin care, and crawl into my freshly made up bed for the remainder of the night. Maybe watch an old Brokenwood, have some tea.
This weekend I do have something fun lined up for Wyatt and his friends. Our little Blackbirds group is meeting at a local farm that is currently in the process of maple sugaring. So the kids will be able to see and participate in that process. The farm owner is a retired special education teacher as well, and she is very excited to be hosting our scouts.
We also had two birthday parties over the weekend, despite my mom’s hospitalization. It was not easy honestly, but we did it. I think they went well even with everything that was happening.
I am going to end here today, but I will be back to blogging again on the regular again soon, hopefully.
Take care of yourselves out there, and help others when you can!
Oh I am so sorry to read this; I mean I’m glad your mom is doing better but dealing with healthcare can be SO hard these days. You are not the only one I’ve heard complaining about the “they need full time care but we’re going to send them home” rigamarole that just does not make any sense!
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