It has been a week! I am sooo ready for a break. It was a week of appointments which always makes for a long week, and coming off of a week where Billy had to work super overtime didn’t make it easier! However, I do feel as if we are finishing up “old business” and moving on in time for autumn.
One thing that finally got accomplished and finished was getting the financials all finished for my mom, and all of the proper care she needs lined up. We had a big meeting on Tuesday that was seriously three and a half hours but at the end I felt such overwhelming relief that my mom was going to be secure and taken care of the way she needs to be. I am not able to be there to do all of the things she needs help with now, and it was very distressing. My brother is not able to either, and both of us had sleepless nights agonizing over her future. I feel like a weight has been lifted and I feel more positive about my mom’s life right now. That was a huge moment.
We also had Wyatt’s follow up appointment with the surgeon this week. It was a mixed bag honestly. He said that Wyatt is doing great, and he is all clear for physical therapy, with no restrictions, which is fantastic news! Onward and upward! However, we do have to keep bracing him and using the wedge pillow until his next appointment, which is in DECEMBER! That was a blow. But, if it needs to be done, it needs to be done and we will get through it. It is certainly not the hardest thing we have done!
We also have an early morning MRI on Tuesday followed by an appointment with his neurosurgeon. He has to have his shunt checked once a year so this is just a regular routine checkup. I hate that he has to have an MRI since he goes feral in them, and it causes him such distress and he just went through a major trauma. But again, we will make it. I feel like at least we are getting everything over and done with. He usually has a freak out for X-rays too, anything he has to lay down for causes him great fear. Children’s Services at Mott has told us that this is because you are so vulnerable when you are laying down, and asked us to think of it like if someone broke into our house: is it scarier when you are awake and on your feet, or laying down in bed? And he has had so many invasive procedures that have caused him pain while laying down already. So it is tough. However, yesterday for his appointment he had no issues at all during his X-ray, and we think it is because he was holding an “emotional support book”. He just held on to that book and was fine. So maybe he can hold a book on Tuesday as well.
Once we finish up at Mott, then we have an evaluation with his physical therapist in the afternoon. It is going to be a long day but at least it will be all out of the way in one day.
There were also some fun moments thrown into the week.
Following Wyatt’s appointment yesterday, instead of heading right home we decided to hang out in Ann Arbor instead for a bit. I had always wanted to go to the Matthaei Botanical Gardens, Wyatt wanted to go for a walk somewhere, and Billy had the day off so it seemed like perfect timing. It was such a great time, and there was so much to look at. We only did part of it, but it was just what I needed after the stressful week of appointments. We spent a lot of time in the Bonsai garden, and then wandering around outside in the Children’s Garden. There was also an indoor tropical biome area and a desert biome as well, and it was a lightbulb went off in my head – we could visit these areas this year since we are doing biomes in science! I love when I find things like that to tie into our learning!
We also went school shopping with my Dad, and Wyatt picked out some new stuff, including that sweatshirt he is wearing in the photo above. My dad and I were kind of wishing they had one in our sizes. It is oversized and not too thick and seems really comfortable. I also picked up some fall decorations while I was out from the Target dollar spot, a cute mushroom canister, a squirrel, a fox, and a pumpkin. I am slowly putting out my fall stuff, but since it feels like fall out here, I am going with it. I blame my cousin. He recently took a trip out East and brought me quite a few souvenirs back, including a cute little teapot from Salem that says Witches Brew. I had to set it out immediately! It was good to see him, and hear some of the stories from his trip.
We also had a little guest the other day. I happened to glance out the window at the right time to see my neighbor’s elderly beagle just chilling on our front lawn. I turned to Billy and was like “Billy! Luna is on our lawn!” and sent him out to take her home. But she seemed perfectly content to just lay there instead, so I went out and chilled with her, petting her and enjoying her company, while Billy alerted the neighbors. I was happy that it took a little time – I love dogs and miss having one but our life with Wyatt right now doesn’t suit one. So I have to enjoy other people’s dogs, and Luna is a sweetie. She was so happy, just hanging out. I feel like she had a tiny adventure, escaping but only going as far as our house, right next door.
And that is probably enough from me today! I hope that whatever you do, you do something that makes you smile!
Still Life, With Cracker Crumbs.. 