Hello everyone! I am sitting here typing away, with my coffee on one side, and Wyatt on the other. He is flipping through a book, and watching Frog and Toad, which incidentally is the cutest little cartoon. He is also chattering away so please ignore any typos. Billy is in the kitchen preparing the sourdough so that he can make a few loaves for Easter. It’s a pretty good morning.
It was a very busy week this week – our appointment season is almost over though! There are times of the year when we have all of Wyatt’s specialist appointments in a row, like a month or so of them, and it is crazy. We had his epileptologist appointment this week, and it went really well. We had nothing but good things to report and his doctor was very pleased! His EEG in June looks like it will only be one night now instead of two, so that was welcome news.
Last Saturday we had a little guest at our house. We watched my littlest niece, who we call The Hurricane because she is a whirling dervish causing mayhem. We had such a great time with her! She kept us soooo busy but it was really cool to hang out with her. We have time with her older sister all the time so it was nice to hang with just E. She went from one thing to the next to the next and so on. She loved our fish so much, they were a big hit. I had to stop her a few times from trying to reach inside the aquariums to grab them though.
Sunday we had a birthday party for another of our nieces. It was so cute to see T. full of excitement at her party. She had all of her friends and family there, and she was happy that she had all of her aunts there at one time. It doesn’t usually happen for some reason and I loved that that made her happy. She had an axolotl themed party with very delicious cupcakes!
This week we also had some sunny warm days, finally!! We are trying to get outside as much as we can on these nice days between now and Wyatt’s surgery. Wyatt and I spent almost all afternoon Wednesday playing basketball outside. It meant lots of rounding up basketballs for me though, so I got quite a workout. I need one of these nieces to come over and fetch for us! We also had dinner out there as well. Wyatt loves picnics, so we had a picnic, then he and his dad played outside until bedtime. It was awesome. This might not sound like much, but before the ramp was built, Wyatt was not able to go outside and play. Wheelchairs are not great on grass, and just getting to the yard was very difficult for the two of us. I would have to carry him out the front door and around the house to the back, which doesn’t sound too hard, but imagine the person you are carrying is 70 pounds. I am not a big human either, so it was getting sort of rough and we just didn’t do it very often. Now though, we have our freedom back and it has been wonderful. Using the ramp all winter to leave the house whenever we wanted, now using the ramp and being able to utilize the deck space, has transformed both of our lives. We were able to get out some yesterday as well. Today is going to be really warm apparently, so we are going to go out on his bike too.
Speaking of his surgery, we are working on preparing for it the best we can. We have pivoted from walking as much in therapy to more strength training, both there and at home. We have added a few extra home exercises to build up his muscle strength, which will help him recover easier, and are just trying to get him to move any body part as much as possible between now and then. We scaled back on school for the moment, focusing just on the essentials (I mean, I think it is all essential but we are sticking a pin in a few things for now – like the Revolutionary War and artist studies).
I also started thinking about what we will need during recovery. What will we do to entertain this kid while he is in bed, or stuck in traction for weeks? What special clothes might we need? Bathing, how does that happen? So we are looking for these solutions right now. I have a whole list of books I made the other day for us to try during that time. I think we will reread some old favorites like Frog and Toad and Mr. Putter and Tabby, introduce some gentle reads for that first week home, like Paddington, and then as he feels a bit better, add in books like The Hardy Boys. Then we will see what else he would like to read.
We had had reservations for Providence in August, which are obviously now cancelled. So, I put together a list of some books for myself as well, that focus on the seaside and the coast. They are not all New England based, but some are. That is the great thing about books, we can travel anywhere with them. And Providence will still be there in the future. The whales will have to wait!
Wyatt and I also convinced Billy to use some of the leftover lumber from the ramp to build little free libraries for us! We want one that two houses – one that is the typical height, and one that is lower for children and wheelchair users. We are also going to have Billy install a camera so we can see into the backyard while we are in his room if we want – we have three cats that like to hang around and I know Wyatt will want to keep updated on them. We have the neighbor’s cat, Knox, who is super sweet and we can actually pet. Then there are two cats that we don’t if they are stray or not. One is a big tabby, and I have named him Angus-Fergus, and there is one that just showed up, a big rough looking guy who has been around. He is white with black splotches, and we named him Brando. I don’t know why they like our porches so much but they do. And that is ok.
And jeez, I feel like I am just rambling away today!! I should wrap this up! Lol.
I hope that whatever you all do today, whatever you do this weekend, that you feel safe and loved and do something that makes you smile.
Still Life, With Cracker Crumbs.. 