Hello everyone! I hope you are doing well this morning! I am feeling relief this week, and could start singing the Hallelujah chorus; Wyatt has not been sick from his meds in the morning for six whole days, and I am hoping and praying that we turned the corner!

We actually had a visit with his epileptologist on Tuesday morning, which went pretty well. Wyatt has medication resistant epilepsy, which means that despite trying multiple medications, they are not able to get them under control. Wyatt’s seizures are focal/myoclonic so right now he is not having those full body, clonic seizures like everyone immediately thinks of when they think of seizures, and hopefully he never does. We learned that he is not a candidate for resection surgery, due to where his seizures originate, but there are still options out there for us to try. There are still medications to try (after giving this poor kid a break for a bit! After a month of vomiting he deserves some time off), and something called a vagus nerve stimulator. This is sort of like a pacemaker that zaps his vagus nerve which dispels the electricity that is gathering to create a seizure. It is something we are very seriously considering in the future. Overall, I left the appointment feeling pretty hopeful.

He was so funny at the appointment too, despite it being super early. He rolled up to sit right next to the doctor like he was conducting the appointment too, and was just chilling with her. Sometimes he takes to people right away, others he needs to warm up too. He absolutely adores Dr. Reed though, which gives me a very good feeling about her.

Last week Devin (my brother) and his fam met us for pizza and then we all headed back to our house for games with the kids. It was hysterical. We played a game called Castle Feud, where two teams each set up their castle and the other team shoots a tiny catapult to knock the other team’s castle down. We spread out between our den and family room and tried to take each other’s castles down. The adults might have made it a bit too exciting, with the Game of Thrones music playing, hyping up the rivalry, because both big kids – Wyatt and Mermaid girl – got a little too excited and ended up getting in a wee bit of trouble. Lol. Nothing too much, they are good kids and just needed a reminder but I think they were a bit overstimulated. The wee one was funny, wandering between rooms like an attacking giant. We of course made sure she was seated and protected before firing the catapult each time! She enjoyed looking at our fish tank too. She would point to Moon swimming around and then turn around and look at me in wonder. It was really neat to experience it with her.

Speaking of Moon, he and his tankmate Sunny the snail are doing well. We took our water to be tested at the aquarium store and the woman working said we were doing awesome. We had A+ water, phew. Sunny is doing so well that she even left us a gift of a clutch of eggs… I don’t know what to do with them honestly because I can’t raise 200 baby Mystery snails! We had fun looking around at the crazy fish types they have there, like this Lionfish. They also have the cutest little cherry shrimp! I didn’t know what those were until we visited that store and they are adorable. I won’t get them as I have nowhere to put them but they are pretty cute.

Other than that, we have been living pretty quietly over here. With our easier mornings (Wyatt is now just super tired after his meds, which is an improvement) I have had time to catch up on some of the things I had to let slide for a month due to his being sick most of the morning. I caught up on Cub Scout stuff I needed to get done, bills.. you know all those fun things….

And that is it for this week! I hope that whatever you do today, you do something that makes you smile!

Just some random photos…